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Indigenous Governance Database

data collection

Using Indigenous Standards to Implement the CARE Principles_Setting Expectations through Tribal Research Codes.jpg

Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes
Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes
Biomedical data are now organized in large-scale databases allowing researchers worldwide to access and utilize the data for new projects. As new technologies generate even larger amounts of data, data governance and data management are becoming pressing challenges. The FAIR principles (Findable,...
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Balancing openness with Indigenous data sovereignty_An opportunity to leave no one behind in the journey to sequence all of life.png

Balancing openness with Indigenous data sovereignty_An opportunity to leave no one behind in the journey to sequence all of life
Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life
The field of genomics has benefited greatly from its “openness” approach to data sharing. However, with the increasing volume of sequence information being created and stored and the growing number of international genomics efforts, the equity of openness is under question. The United Nations...
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The SEEDS of Indigenous Population Health Data Linkage_IGD.jpg

The SEEDS of Indigenous population health data linkage
Globally, the ways that Indigenous data are collected, used, stored, shared, and analyzed are advancing through Indigenous data governance movements. However, these discussions do not always include the increasingly sensitive nature of linking Indigenous population health (IPH) data. During the...
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Indigenous Data Sovereignty and Policy
This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data...
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Operationalizing the CARE Principles for Indigenous Data Governance” Webinar.png

Operationalizing the CARE Principles for Indigenous Data Governance” Webinar
Operationalizing the CARE Principles for Indigenous Data Governance Webinar
Presented by: Stephanie R. Carroll , Assistant Professor and Associate Director of the Native Nations Institute, University of Arizona Jane Anderson , Associate Professor, Department of Anthropology and Museum Studies, New York University Extractive and unethical research practices led to the...
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GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty
Indigenous Peoples around the globe have diverse narratives of resilience and adaptability; however, they are also acutely impacted by the negative social, economic, environmental and health outcomes of COVID-19 (UN Special Rapporteur on the rights of Indigenous Peoples, 2020). As such, it is vital...
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Miriam Jorgensen on New Policy Brief Dissecting Round 1 Allocations of CARES Act Tribal Funding

Miriam Jorgensen on New Policy Brief Dissecting Round 1 Allocations of CARES Act Tribal Funding
Miriam Jorgensen on New Policy Brief Dissecting Round 1 Allocations of CARES Act Tribal Funding
Miriam Jorgensen, Research Director with the Harvard Project and with Native Nations Institute at the University of Arizona, discusses the release of a new Harvard Project and Native Nations Institute policy brief dissecting the US Treasury Department's round 1 allocations of CARES Act funding for...
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Policy Brief: Indigenous Data Sovereignty in Arizona: Setting an Agenda
Indigenous data sovereignty asserts the rights of Native nations and Indigenous Peoples to govern the collection, ownership, and application of their own data. Indigenous data sovereignty derives from tribes’ inherent right to govern their peoples, lands, and resources. In the United States and...
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CARE Principles for Indigenous Data Governance
Los Principios CREA para la Gobernanza de Datos Indigenas The increasing convergence of technology infrastructure and digital connectivity has raised the value of data across the globe. Whether existing knowledge is digitised or new data are ‘born digital’, the impact they have on decision-making,...
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Tribal Data Governance and Informational Privacy: Constructing "Indigenous Data Sovereignty"
There is a growing movement among Indigenous peoples to assert aright to “Indigenous data sovereignty,” and yet, the term “data sovereignty” is not widely understood. What does it mean to control the collection, useand management of information in an era of “Big Data,” in which digital technology...
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