data collection
The increasing convergence of technology infrastructure and digital connectivity has raised the value of data across the globe. Whether existing knowledge is digitised or new data are ‘born digital’, the impact they have on decision-making, allocation of resources, and innovation is significant...
There is a growing movement among Indigenous peoples to assert aright to “Indigenous data sovereignty,” and yet, the term “data sovereignty” is not widely understood. What does it mean to control the collection, useand management of information in an era of “Big Data,” in which digital technology...
We present the most comprehensive set of estimates to date for status First Nations mortality in Canada. We use administrative data from Indigenous and Northern Affairs Canada to establish a set of stylized facts regarding status First Nations mortality rates. Between 2010 to 2013, the mortality...
Native scholars working to advance the research on indigenous data sovereignty give their perspectives on the issues facing Native communities around data collection and date use. Dr. Jameson D. Lopez (Fort Yuma Quechan (Kwatsáan) Indian Tribe), Carmenlita Chief (Navajo Nation), and Dr. Tennille...
Indigenous scholars are leading initiatives to improve access to genetic andgenomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past,Indigenous peoples’ engagement with genomic research...
Indigenous Data Sovereignty (IDS) and Indigenous Data Governance are Indigenous-led movements and practices through which Indigenous peoples are setting their own visions for good data regarding data generated and collected by and about them. IDS movements and practices can be seen as a...
On May 18, 2018 at the Native American and Indigenous Studies Association (NAISA) Conference in Los Angeles, six leading scholars discussed the landscape and global opportunities and challenges Indigenous peoples face in the growing Indigenous data sovereignty movement. The presentations provided...
A Call to Action for Native Nations, Tribal Citizens, Governments, Organizations, Scholars, and Funders We live in the information age. Governments, industries, and organizations of all kinds are claiming a right to gather information on everything from our spending habits to our health records...
Native nations in the United States are increasingly exercising Indigenous data sovereignty (ID-Sov)— the right of a nation to govern the collection, ownership, and application of its own data. While ID-Sov is the goal, data governance— the ownership, collection, control, analysis, and use of data...
Data about Indigenous populations in the United States are inconsistent and irrelevant. Federal and state governments and researchers direct most collection, analysis, and use of data about U.S. Indigenous populations. Indigenous Peoples’ justified mistrust further complicates the collection and...
