Indigenous Governance Database
research
Genetic Research with Indigenous Peoples: Perspectives on Governance and Oversight in the US
Indigenous Peoples are increasingly exerting governance and oversight over genomic research with citizens of their nations, raising questions about how best to enforce research regulation between American Indian, Alaska Native, and Native Hawaiian peoples and researchers. Using a community-engaged…
Indigenous Peoples and research: self-determination in research governance
Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the…
Indigenous Peoples’ Rights in Data
This is the one sheeter version of the publication "Indigenous Peoples' Rights in Data: a contribution toward Indigenous Research Sovereignty" Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions toward greater Indigenous self-determination and control across a…
Indigenous Peoples' Rights in Data: a contribution toward Indigenous Research Sovereignty
Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions toward greater Indigenous self-determination and control across a range of domains that impact Indigenous Peoples' communities and cultures. Declarations for sovereignty are rising throughout Indigenous…
Extending the CARE Principles from tribal research policies to benefit sharing in genomic research
Indigenous Peoples have historically been targets of extractive research that has led to little to no benefit. In genomics, such research not only exposes communities to harms and risks of misuse, but also deprives such communities of potential benefits. Tribes in the US have been exercising their…
Archaeology and Social Justice in Native America
Over the past 20 years, collaboration has become an essential aspect of archaeological practice in North America. In paying increased attention to the voices of descendant and local communities, archaeologists have become aware of the persistent injustices these often marginalized groups face.…
Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes
Biomedical data are now organized in large-scale databases allowing researchers worldwide to access and utilize the data for new projects. As new technologies generate even larger amounts of data, data governance and data management are becoming pressing challenges. The FAIR principles (Findable,…
Indigenous Data Sovereignty: How Researchers can Empower Data Governance with Lydia Jennings
Indigenous land management practices result in higher species richness, less deforestation, and land degradation than non-Indigenous strategies. Many environmental researchers, data repositories, and data service operations recognize the importance of collaborating with Indigenous nations,…
Improving Ethical Practice in Transdisciplinary Research Projects Webinar
Transdisciplinary research, or research conducted by people from different disciplines and organizations working together to solve a common problem, holds promise for communities and scientists seeking to address complex socio-ecological problems like climate change. However, this collaborative…
Post COVID-19 Implications for Genetic Diversity and Genomics Research & Innovation: A Call for Governance and Research Capacity
At a time of significant technological change and digitization in the biological sciences, the COVID-19 pandemic has highlighted again the inequities in the research and innovation ecosystem. Based on a consultation with an internationally diverse group of stakeholders from multiple fields and…
Operationalizing the CARE and FAIR Principles for Indigenous data futures
As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for…
Working with the CARE principles: operationalising Indigenous data governance
Shifting the focus of data governance from consultation to values-based relationships to promote equitable Indigenous participation in data processes. Indigenous data sovereignty is becoming an increasingly relevant topic, as limited opportunities for benefit sharing have focused attention on the…
Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group
The systemic challenges of the COVID-19 pandemic require cross-disciplinary collaboration in a global and timely fashion. Such collaboration needs open research practices and the sharing of research outputs, such as data and code, thereby facilitating research and research reproducibility and…
Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance
Indigenous Peoples conducted research long before their interactions with European settlers. Whether through observation or practice, research in a non-western context was woven into Indigenous ways of knowing and being. It continues to inform Indigenous Knowledges of landscapes and natural…
Protocol for Review of Environmental and Scientific Research Proposals
The principles of skennen, kariwiio and kasastensera serve as the foundation and guiding force for the Akwesasne Task Force on the Environment (ATFE). Since the beginning of time, our Creator has told our people to strive for peace and as individuals, communities and Nations, we must constantly…
Operationalizing the CARE Principles for Indigenous Data Governance Webinar
Presented by: Stephanie R. Carroll, Assistant Professor and Associate Director of the Native Nations Institute, University of ArizonaJane Anderson, Associate Professor, Department of Anthropology and Museum Studies, New York University Extractive and unethical research practices led to the…
Mātauranga and Science
"Mātauranga Māori is not like an archive of information but rather is like a tool for thinking, organising information, considering the ethics of knowledge, the appropriateness of it all and informing us about our world and our place in it." (Mead 2003, p. 306) Māori have become a pivotal force in…
Articulating ‘free, prior and informed consent’ (FPIC) for engineered gene drives
Recent statements by United Nations bodies point to free, prior and informed consent (FPIC) as a potential requirement in the development of engineered gene drive applications. As a concept developed in the context of protecting Indigenous rights to self-determination in land development scenarios…
Access and Management: Indigenous Perspectives on Genomic Data Sharing
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a…
Tribally-Driven Participatory Research: State of the practice and potential strategies for the future
This article discusses current practice of research with and by American Indian tribal governments in the United States. It begins with a brief overview of Community-Based Participatory Research and compares and contrasts its principles and methods with what this paper terms Tribally-Driven…