Stephanie Russo Carroll

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Frontiers

Genetic Research with Indigenous Peoples: Perspectives on Governance and Oversight in the US

Indigenous Peoples are increasingly exerting governance and oversight over genomic research with citizens of their nations, raising questions about how best to enforce research regulation between American Indian, Alaska Native, and Native Hawaiian peoples and researchers. Using a community-engaged…

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Frontiers

Indigenous Peoples and research: self-determination in research governance

Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the…

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Applying the ‘CARE Principles for Indigenous Data Governance’ to ecology and biodiversity research

Applying the ‘CARE Principles for Indigenous Data Governance’ to ecology and biodiversity research

Indigenous Peoples are increasingly being sought out for research partnerships that incorporate Indigenous Knowledges into ecology research. In such research partnerships, it is essential that Indigenous data are cared for ethically and responsibly. Here we outline how the ‘CARE Principles for…

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Water Back A Review Centering Rematriation

Water Back: A Review Centering Rematriation and Indigenous Water Research Sovereignty

The recent Land Back movement has catalysed global solidarity towards addressing the oppression and dispossession of Indigenous Peoples’ Lands and territories. Largely absent from the discourse, however, is a discussion of the alienation of Indigenous Peoples from Water by settler-colonial states.…

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Frontiers

Indigenous Peoples' Rights in Data: a contribution toward Indigenous Research Sovereignty

Indigenous Peoples' right to sovereignty forms the foundation for advocacy and actions toward greater Indigenous self-determination and control across a range of domains that impact Indigenous Peoples' communities and cultures. Declarations for sovereignty are rising throughout Indigenous…

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Reclaiming Indigenous Health in the US: Moving beyond the Social Determinants of Health

Reclaiming Indigenous Health in the US: Moving beyond the Social Determinants of Health

The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from…

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Science Seminar: Implementing the CARE Principles in Open Data Repositories

Image The people and purpose-oriented CARE Principles (Collective Benefit, Authority to Control, Responsibility, and Ethics) reflect the crucial role of data in advancing innovation, governance, and self-determination among Indigenous Peoples. The CARE Principles complement and extend the…

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Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

Indigenous Peoples have historically been targets of extractive research that has led to little to no benefit. In genomics, such research not only exposes communities to harms and risks of misuse, but also deprives such communities of potential benefits. Tribes in the US have been exercising their…

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Facilitating Exchange between Arctic and Southwest Indigenous Communities on Food and Knowledge Sovereignty

Indigenous Foods Knowledges Network: Facilitating Exchange between Arctic and Southwest Indigenous Communities on Food and Knowledge Sovereignty

On a sunny morning in June of 2019, our hosts at the Athabaskan Nay'dini'aa Na'Kayax' Culture Camp, located near Chickaloon Native Village in south-central Alaska, set up a table near the smoke house and demonstrated how to fillet salmon. It was salmon season in Chickaloon, and young campers were…

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Archaeology and Social Justice in Native America

Archaeology and Social Justice in Native America

Over the past 20 years, collaboration has become an essential aspect of archaeological practice in North America. In paying increased attention to the voices of descendant and local communities, archaeologists have become aware of the persistent injustices these often marginalized groups face.…

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Relationships First and Always: A Guide to Collaborations with Indigenous Communities

Relationships First and Always: A Guide to Collaborations with Indigenous Communities

Here in the U.S., we are in the midst of a great national reckoning. We have an extraordinary opportunity to acknowledge our roles in structural racism, reexamine biases, and engage in co-creating initiatives that honor the lives and livelihoods of Black, Indigenous, and People of Color. Every…

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Expanded Ethical Principles for Research Partnership and Transdisciplinary Natural Resource Management Science

Expanded Ethical Principles for Research Partnership and Transdisciplinary Natural Resource Management Science

Natural resource researchers have long recognized the value of working closely with the managers and communities who depend on, steward, and impact ecosystems. These partnerships take various forms, including co-production and transdisciplinary research approaches, which integrate multiple…

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COVID-19 and Indigenous Peoples: Tools to Promote Equity and Best Practices

COVID-19 and Indigenous Peoples: Tools to Promote Equity and Best Practices

This is the second volume of a two-volume special issue of the American Indian Culture and Research Journal, volume 44.3, dedicated to the indirect impact of COVID-19 on Indigenous Peoples. The first volume (44.2) covers the degree to which Indigenous Peoples were affected by COVID-19 and how this…

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COVID-19 and Indigenous Peoples Impact of and Response to the Pandemic

COVID-19 and Indigenous Peoples: Impact of and Response to the Pandemic

In a two-volume, special edition of the American Indian Culture and Research Journal—volume 44, issues 2 and 3—we examine COVID-19’s unique implications for Indigenous Peoples, nations, and communities. We organized these special issues because the COVID-19 pandemic has particularly adversely…

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Operationalizing the CARE and FAIR Principles for Indigenous data futures

Operationalizing the CARE and FAIR Principles for Indigenous data futures

As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for…

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Working with the CARE principles: operationalising Indigenous data governance

Working with the CARE principles: operationalising Indigenous data governance

Shifting the focus of data governance from consultation to values-based relationships to promote equitable Indigenous participation in data processes. Indigenous data sovereignty is becoming an increasingly relevant topic, as limited opportunities for benefit sharing have focused attention on the…

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Case Report Indigenous Sovereignty in a Pandemic Tribal Codes in the United States as Preparedness.png

Case Report: Indigenous Sovereignty in a Pandemic: Tribal Codes in the United States as Preparedness

Indigenous Peoples globally and in the United States have combatted and continue to face disease, genocide, and erasure, often the systemic result of settler colonial policies that seek to eradicate Indigenous communities. Many Native nations in the United States have asserted their inherent…

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Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance

Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance

Indigenous Peoples conducted research long before their interactions with European settlers. Whether through observation or practice, research in a non-western context was woven into Indigenous ways of knowing and being. It continues to inform Indigenous Knowledges of landscapes and natural…

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Indigenous Data Sovereignty and Policy

Indigenous Data Sovereignty and Policy

This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data…

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Operationalizing the CARE Principles for Indigenous Data Governance” Webinar

Operationalizing the CARE Principles for Indigenous Data Governance Webinar

Presented by: Stephanie R. Carroll, Assistant Professor and Associate Director of the Native Nations Institute, University of ArizonaJane Anderson, Associate Professor, Department of Anthropology and Museum Studies, New York University Extractive and unethical research practices led to the…