Indigenous Governance Database
Stephanie Russo Carroll
Post COVID-19 Implications for Genetic Diversity and Genomics Research & Innovation: A Call for Governance and Research Capacity
At a time of significant technological change and digitization in the biological sciences, the COVID-19 pandemic has highlighted again the inequities in the research and innovation ecosystem. Based on a consultation with an internationally diverse group of stakeholders from multiple fields and…
COVID-19 and Indigenous Peoples: Impact of and Response to the Pandemic
In a two-volume, special edition of the American Indian Culture and Research Journal—volume 44, issues 2 and 3—we examine COVID-19’s unique implications for Indigenous Peoples, nations, and communities. We organized these special issues because the COVID-19 pandemic has particularly adversely…
Operationalizing the CARE and FAIR Principles for Indigenous data futures
As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for…
Working with the CARE principles: operationalising Indigenous data governance
Shifting the focus of data governance from consultation to values-based relationships to promote equitable Indigenous participation in data processes. Indigenous data sovereignty is becoming an increasingly relevant topic, as limited opportunities for benefit sharing have focused attention on the…
Case Report: Indigenous Sovereignty in a Pandemic: Tribal Codes in the United States as Preparedness
Indigenous Peoples globally and in the United States have combatted and continue to face disease, genocide, and erasure, often the systemic result of settler colonial policies that seek to eradicate Indigenous communities. Many Native nations in the United States have asserted their inherent…
Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance
Indigenous Peoples conducted research long before their interactions with European settlers. Whether through observation or practice, research in a non-western context was woven into Indigenous ways of knowing and being. It continues to inform Indigenous Knowledges of landscapes and natural…
Indigenous Data Sovereignty and Policy
This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data…
Operationalizing the CARE Principles for Indigenous Data Governance Webinar
Presented by: Stephanie R. Carroll, Assistant Professor and Associate Director of the Native Nations Institute, University of Arizona Jane Anderson, Associate Professor, Department of Anthropology and Museum Studies, New York University Extractive and unethical research practices led to the…
GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty
Indigenous Peoples around the globe have diverse narratives of resilience and adaptability; however, they are also acutely impacted by the negative social, economic, environmental and health outcomes of COVID-19 (UN Special Rapporteur on the rights of Indigenous Peoples, 2020). As such, it is vital…
Indigenous Data in the Covid-19 Pandemic: Straddling Erasure, Terrorism, and Sovereignty
On April 10, 2020, Covid-19 case rates on tribal lands were more than four times the rate in the United States.1 Indigenous Peoples across the country continue to be disproportionately impacted by the coronavirus. As of May 18, 2020, the Navajo Nation has the highest Covid-19 case rates surpassing…
American Indian Reservations and COVID-19 Correlates of Early Infection Rates in the Pandemic
Objective: To determine the household and community characteristics most closely associated with variation in COVID-19 incidence on American Indian reservations in the lower 48 states. Design: Multivariate analysis with population weights. Setting: Two hundred eighty-seven American Indian…
Interview with Dr. Stephanie Carroll about New Research on COVID-19 Spread in Indian Country
Listen to public health researcher Stephanie Carroll, co-author of “American Indian Reservations and COVID-19: Correlates of Early Infection Rates in the Pandemic.” Hear about this new research showing which factors, like household plumbing and language barriers, correlate with a higher spread of…
Policy Brief: Indigenous Data Sovereignty in Arizona: Setting an Agenda
Indigenous data sovereignty asserts the rights of Native nations and Indigenous Peoples to govern the collection, ownership, and application of their own data. Indigenous data sovereignty derives from tribes’ inherent right to govern their peoples, lands, and resources. In the United States and…
Policy Brief: Supporting Tribal Data Governance for Indigenous Community Climate Resilience
Tribal communities have the right to de fine, collect, protect, interpret, manage, and apply data in a way that respects Indigenous ethics, values, and relational responsibilities. These rights are critically relevant in the context of increasing climate impacts, where Indigenous communities need…
Principles of Indigenous Data Governance
Indigenous data, whether collected by national governments and institutions or gathered by Indigenous Peoples themselves, are integral for: decision-making; the exercise of collective rights to self-determination; the affirmation and application of Indigenous epistemologies; and fulfilling…
Access and Management: Indigenous Perspectives on Genomic Data Sharing
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a…
Building an Indigenous Foods Knowledges Network Through Relational Accountability
In recent decades, there has been a movement toward rectifying injustices and developing collaborations between Indigenous communities and mainstream researchers to address environmental challenges that are of concern to Indigenous Peoples. This movement, primarily driven by Indigenous community…
Indigenous Data Governance: Strategies from United States Native Nations
Data have become the new global currency, and a powerful force in making decisions and wielding power. As the world engages with open data, big data reuse, and data linkage, what do data-driven futures look like for communities plagued by data inequities? Indigenous data stakeholders and non-…
Issues in Open Data: Indigenous Data Sovereignty
Open data in the context of Indigenous peoples is a double-edged sword. Open data is a site of tension for Indigenous peoples. Open data provides opportunities for sustainable development according to Indigenous aspirations, yet also sits at the nexus of current and historic data challenges as a…
Genomic Research Through an Indigenous Lens: Understanding the Expectations
Indigenous scholars are leading initiatives to improve access to genetic and genomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past, Indigenous peoples’ engagement with genomic research…