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Indigenous Governance Database

Articulating ‘free, prior and informedconsent’ (FPIC) for engineered gene drives

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2020

Articulating‘free, prior and informed consent’ (FPIC) for engineered gene drives

Articulating‘free, prior and informed consent’ (FPIC) for engineered gene drives
Articulating ‘free, prior and informed consent’(FPIC) for engineered gene drives

Recent statements by United Nations bodies point to free, prior and informed consent (FPIC) as a potential requirement in the development of engineered gene drive applications. As a concept developed in the context of protecting Indigenous rights to self-determination in land development scenarios, FPIC would need to be extended to apply to the context of ecological editing. Without an explicit framework of application, FPIC could be interpreted as a narrowly framed process of community consultation focused on the social implications of technology, and award little formal or advisory power indecision-making to Indigenous peoples and local communities. In this paper, we argue for an articulation of FPIC that attends to issues of transparency, iterative community-scale consent, and shared power through co-development among Indigenous peoples, local communities, researchers and technology developers. In realizing a comprehensive FPIC process, researchers and developers have an opportunity to incorporate enhanced participation and social guidance mechanisms into the design, development and implementation of engineered gene drive applications.

data governance, community engagement, research, consultation policies
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Economic and Community Development
Useful Links: 
Free, Prior and Informed Consent: Food and Agriculture Organization of the United Nations
United Nations Hits the Brakes on Gene Drives
To overcome decades of mistrust, a workshop aims to train Indigenous researchers to be their own genome experts

George DR, Kuiken T, Delborne JA. 2019 Articulating ‘free, prior and informed consent’ (FPIC) for engineered gene drives.Proc. R. Soc. B286: 20191484.http://dx.doi.org/10.1098/rspb.2019.1484

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