Indigenous Governance Database
data governance
Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance
Indigenous Peoples conducted research long before their interactions with European settlers. Whether through observation or practice, research in a non-western context was woven into Indigenous ways of knowing and being. It continues to inform Indigenous Knowledges of landscapes and natural…
Indigenous Data Sovereignty: Activating Policy and Practice
The Global Indigenous Data Alliance (GIDA), the US Indigenous Data Sovereignty Network (USIDSN), and ORCID invite you to join us for a webinar about Global Indigenous Data Alliance Policy Interaction. We have asked three panelists to speak about their experiences with Indigenous Data Sovereignty;…
Operationalizing the CARE Principles for Indigenous Data Governance Webinar
Presented by: Stephanie R. Carroll, Assistant Professor and Associate Director of the Native Nations Institute, University of Arizona Jane Anderson, Associate Professor, Department of Anthropology and Museum Studies, New York University Extractive and unethical research practices led to the…
GIDA-RDA COVID-19 Guidelines for Data Sharing Respecting Indigenous Data Sovereignty
Indigenous Peoples around the globe have diverse narratives of resilience and adaptability; however, they are also acutely impacted by the negative social, economic, environmental and health outcomes of COVID-19 (UN Special Rapporteur on the rights of Indigenous Peoples, 2020). As such, it is vital…
Indigenous Data in the Covid-19 Pandemic: Straddling Erasure, Terrorism, and Sovereignty
On April 10, 2020, Covid-19 case rates on tribal lands were more than four times the rate in the United States.1 Indigenous Peoples across the country continue to be disproportionately impacted by the coronavirus. As of May 18, 2020, the Navajo Nation has the highest Covid-19 case rates surpassing…
Indigenous Data Sovereignty: The CARE Principles and the Biocultural Labels Initiative
The NYU Alliance for Public Interest Technology Alliance is a dynamic and multidisciplinary group of NYU faculty who are experts on the responsible and ethical creation, use and governance of technology in society. The Alliance is a provostial initiative that connects numerous NYU hubs…
Articulating ‘free, prior and informed consent’ (FPIC) for engineered gene drives
Recent statements by United Nations bodies point to free, prior and informed consent (FPIC) as a potential requirement in the development of engineered gene drive applications. As a concept developed in the context of protecting Indigenous rights to self-determination in land development scenarios…
Policy Brief: Indigenous Data Sovereignty in Arizona: Setting an Agenda
Indigenous data sovereignty asserts the rights of Native nations and Indigenous Peoples to govern the collection, ownership, and application of their own data. Indigenous data sovereignty derives from tribes’ inherent right to govern their peoples, lands, and resources. In the United States and…
Policy Brief: Supporting Tribal Data Governance for Indigenous Community Climate Resilience
Tribal communities have the right to de fine, collect, protect, interpret, manage, and apply data in a way that respects Indigenous ethics, values, and relational responsibilities. These rights are critically relevant in the context of increasing climate impacts, where Indigenous communities need…
Principles of Indigenous Data Governance
Indigenous data, whether collected by national governments and institutions or gathered by Indigenous Peoples themselves, are integral for: decision-making; the exercise of collective rights to self-determination; the affirmation and application of Indigenous epistemologies; and fulfilling…
Access and Management: Indigenous Perspectives on Genomic Data Sharing
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a…
CARE Principles for Indigenous Data Governance
Los Principios CREA para la Gobernanza de Datos Indigenas The increasing convergence of technology infrastructure and digital connectivity has raised the value of data across the globe. Whether existing knowledge is digitised or new data are ‘born digital’, the impact they have on decision-making,…
Tribal Data Governance and Informational Privacy: Constructing "Indigenous Data Sovereignty"
There is a growing movement among Indigenous peoples to assert aright to “Indigenous data sovereignty,” and yet, the term “data sovereignty” is not widely understood. What does it mean to control the collection, useand management of information in an era of “Big Data,” in which digital technology…
First Peoples Lost: Determining the State of Status First Nations Mortality in Canada Using Administrative Data
We present the most comprehensive set of estimates to date for status First Nations mortality in Canada. We use administrative data from Indigenous and Northern Affairs Canada to establish a set of stylized facts regarding status First Nations mortality rates. Between 2010 to 2013, the mortality…
Issues in Open Data: Indigenous Data Sovereignty
Open data in the context of Indigenous peoples is a double-edged sword. Open data is a site of tension for Indigenous peoples. Open data provides opportunities for sustainable development according to Indigenous aspirations, yet also sits at the nexus of current and historic data challenges as a…
Indigenous Data Sovereignty Panel IDSOV Summit Arizona 2019
Native scholars working to advance the research on indigenous data sovereignty give their perspectives on the issues facing Native communities around data collection and date use. Dr. Jameson D. Lopez (Fort Yuma Quechan (Kwatsáan) Indian Tribe), Carmenlita Chief (Navajo Nation), and Dr. Tennille…
Genomic Research Through an Indigenous Lens: Understanding the Expectations
Indigenous scholars are leading initiatives to improve access to genetic and genomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past, Indigenous peoples’ engagement with genomic research…
Good Data Practices for Indigenous Data Sovereignty
Indigenous Data Sovereignty (IDS) and Indigenous Data Governance are Indigenous-led movements and practices through which Indigenous peoples are setting their own visions for good data regarding data generated and collected by and about them. IDS movements and practices can be seen as a…
Tribally-Driven Participatory Research: State of the practice and potential strategies for the future
This article discusses current practice of research with and by American Indian tribal governments in the United States. It begins with a brief overview of Community-Based Participatory Research and compares and contrasts its principles and methods with what this paper terms Tribally-Driven…