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Indigenous Governance Database

Access and Management: Indigenous Perspectives on Genomic Data Sharing

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2019

Access and Management: Indigenous Perspectives on Genomic Data Sharing

Access and Management: Indigenous Perspectives on Genomic Data Sharing
Access and Management: Indigenous Perspectives on Genomic Data Sharing

As genomic researchers are encouraged to engage in broad genomic data shar­ing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal lead­ers, clinicians, researchers, policy makers, and tribal research review board members about their perspectives on ethical issues related to genetics in AI/AN/NH communi­ties. We report findings related to perspec­tives on genetic research, data sharing, and envisioning stronger oversight and manage­ment of data. In particular, participants voiced concerns about different models of data sharing, infrastructure and logistics for housing data, and who should have authority to grant access to data. The results will ultimately guide policy-making and the creation of guidelines and new strategies for tribes to drive the research agenda and promote ethically and culturally appropriate research.

data governance, data sovereignty, research
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Related Resources: 
Genomic Research Through an Indigenous Lens: Understanding the Expectations
Indigenous scholars are leading initiatives to improve access to genetic and genomic research and health care based on their unique cultural contexts and within sovereign-based governance models created and accepted by their peoples. In the past,Indigenous peoples’ engagement with genomic research...
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The Strategic Power of Data: A Key Aspect of Sovereignty

The Strategic Power of Data: A Key Aspect of Sovereignty
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The lack of good data about U.S. American Indian and Alaska Native populations hinders tribes’ development activities, but it also highlights a space for sovereign action. In coming years, tribes will no doubt continue to advocate for better national data and at the same time increasingly implement...
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Stronger Ethics, Stronger Research: Tribal Governance as a Key Community Health Speaker

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2015 CRCAIH Summit Keynote Address by Dr. Malia Villegas, National Congress of American Indians, Policy Research Center.
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