Indigenous Governance Database
research
Articulating ‘free, prior and informed consent’ (FPIC) for engineered gene drives
Recent statements by United Nations bodies point to free, prior and informed consent (FPIC) as a potential requirement in the development of engineered gene drive applications. As a concept developed in the context of protecting Indigenous rights to self-determination in land development scenarios…
Access and Management: Indigenous Perspectives on Genomic Data Sharing
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a…
Tribally-Driven Participatory Research: State of the practice and potential strategies for the future
This article discusses current practice of research with and by American Indian tribal governments in the United States. It begins with a brief overview of Community-Based Participatory Research and compares and contrasts its principles and methods with what this paper terms Tribally-Driven…
Honoring Nations: Sarah Hicks: NCAI and the Partnership for Tribal Governance
Former NCAI Policy Research Center Director Sarah Hicks discusses the growth of the National Congress of American Indians (NCAI) and specifically its recent initiatives to support the nation-building and advocacy efforts of Native nations.
Stronger Ethics, Stronger Research: Tribal Governance as a Key Community Health Speaker
2015 CRCAIH Summit Keynote Address by Dr. Malia Villegas, National Congress of American Indians, Policy Research Center.